Is there anybody out there...
Just nod if you can hear me,
Is there anyone home
Well, if you haven’t heard otherwise, my most awesome doctor ever left practice at the end of January. This upset me a *lot* because it seemed he really got me, and he was willing to discuss things with me and talk to me like an equal. Definitely not a neurologist...
After some tears and days of mulling over what to do, I decided to transfer to the University of Maryland comphrensive cancer center. My thinking was two fold, I probably should have been at an NCI center all along and, I know if things don’t work, I’ll end up needing a transplant and that will have to be at at NCI center. I suppose I could have gone back to Johns Hopkins, but... I didn’t like my doctor there. He didn’t laugh at my joke and, while nice enough, was more paternalistic than I like.
A few night ago, my anxiety got the best of me, and I started believing the new doctor would want to do a transplant on me. The exact things we’d been working to avoid.
I am happy to report that did not happen. I met the new guy today and he agreed transplant was not on the table. His theory was that this was a new lymphoma, not a relapse of the old one. And for that reason, he was happy treating it like we did front line. And I’ve read that theory before, too. He just wants to follow me like he would if we just finished front line treatment. Yay! He said he contemplated giving me a bit more chemo, but changed his mind since it was very localized. The one thing that is water under the bridge now, if he would have continued chemo vs doing radiation. But what’s done is done. He was even confident enough he’d pull the port out.
So yay!
And I’ll probably keep the port as long as the local place keeps letting me go for flushes. At some point they may realize I’m not seeing any doctors there.
Is there anyone home
Well, if you haven’t heard otherwise, my most awesome doctor ever left practice at the end of January. This upset me a *lot* because it seemed he really got me, and he was willing to discuss things with me and talk to me like an equal. Definitely not a neurologist...
After some tears and days of mulling over what to do, I decided to transfer to the University of Maryland comphrensive cancer center. My thinking was two fold, I probably should have been at an NCI center all along and, I know if things don’t work, I’ll end up needing a transplant and that will have to be at at NCI center. I suppose I could have gone back to Johns Hopkins, but... I didn’t like my doctor there. He didn’t laugh at my joke and, while nice enough, was more paternalistic than I like.
A few night ago, my anxiety got the best of me, and I started believing the new doctor would want to do a transplant on me. The exact things we’d been working to avoid.
I am happy to report that did not happen. I met the new guy today and he agreed transplant was not on the table. His theory was that this was a new lymphoma, not a relapse of the old one. And for that reason, he was happy treating it like we did front line. And I’ve read that theory before, too. He just wants to follow me like he would if we just finished front line treatment. Yay! He said he contemplated giving me a bit more chemo, but changed his mind since it was very localized. The one thing that is water under the bridge now, if he would have continued chemo vs doing radiation. But what’s done is done. He was even confident enough he’d pull the port out.
So yay!
And I’ll probably keep the port as long as the local place keeps letting me go for flushes. At some point they may realize I’m not seeing any doctors there.
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