Wednesday, December 04, 2019

DONE!!!! (again)

Last radiation was today. I did not ring the bell. The nurse asked if I wanted to and I gemmed a bit, then said I was convinced that someone from marketing would insist on it because of my name and the sign above their bell (“Ring in Hope”). The nurse got this gleam in her eyes like “oh wow, that is an excellent idea!” And then I said no. LOL

Anyway, K took half a day off to come with me. Partially it was an excuse to leave work because he has been run ragged recently. Like 75 hour week for 6 weeks straight. But it was nice. We went to lunch afterward.

He is happy an optimistic that this is it. I’m less so. Partially because the evidence is sparse on how durable a Brentuximab remission is. And partially because it wasn’t supposed to come back at all! So yeah, I’m not convinced this is it. But it’s it for this now. Last time, I moved on with life very successfully, to the point I argued with the doctors that it couldn’t possibly be back! Now... who knows. And we did kind of follow a front-line path, not full standard of care for a relapse. Trying to avoid transplant.

PET in January to confirm, and then on to the regular follow ups. I assume every 3-4 months for a few years and then backing off some. No clue how long I’ll keep my port this time. I bet about a year.

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