Sunday, June 09, 2019

Where I am

Monday morning, I am calling JH back and will talk to them more about the trial. I’m not sold on it, but I’ll at least go in and talk more. I have major hesitations. I think mostly it boils down my thinking that the risks are higher than I need right now. 

But I also decided I’m going to go see my original oncologist. He was a lymphoma guy, he did his fellowship with Hopkins hematology. And so I want a tie breaker opinion. He’s only an hour away, so it’s not like it’s hard to see him. 

I’m really leaning toward the targeted chemo route. ORR is 93%, and it looks like it does provide a durable remission.

Everybody is so sold on immunotherapy being the great breakthrough, and it is. I get that. But it’s not without some serious risks, and I’m not sure they are right for me. Not that chemo doesn’t have risks, but, I’ve done that. I know them. And the options I’m looking at do not include treatment related death.

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