Wednesday, May 15, 2019

I feel like things are starting to move

compared with 2004, this has been going at a snails pace. I’m slightly to blame since I was all blazé and “I’m out of town next week, and it’s just hodgkins, it’s slow and can sit.” Yes, my oncologist cringed a bit at that and kindly pointed out it’s sitting in the middle of my chest and getting close to things like the aorta. But anyway, typically hodgkins is a nice, slow grower and it’s not a huge rush. But I’m ready to get on with it! Last time, I went from diagnosis to chemo in 2 weeks, and given that is my frame of reference, and it’s been 2 weeks. Enough already! But really, I just need a start date so I can start planning things out. For example, if I start May 24th, I can layout a schedule and commit to things. As it is, I can’t even plan a meeting for mid-June because I don’t know where/how I’ll be.

In cost of healthcare news, back from a July 2994 post, my biopsy genetic cost $4400 last time (and was denied).
4,360.00 was denied with the following code: 256 SERVICES MUST BE PERFORMED BY A PARTICIPATING PROVIDER. CLAIM IS DENIED. MEMBER MAY BE BILLED. 

Same tests at the same lab billed roughly $10k this time. But it was paid with no fight. Yay? I could not find my cost spreadsheet. Alas.

Radiation oncology tomorrow. Johns Hopkins next Tuesday. I have about given up on the clinical trial, and I’m ok with that.

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