Thursday, May 16, 2019

Dates

May 15, 2004 - found lump above my collarbone
June 16, 2004 - official diagnosis
July 1, 2004 - started chemo
Dec 2004 - ended chemo
April 22, 2014 - my “have a nice life” (i.e., “last”) oncology follow up
March 17, 2019 - stuttering lacunae stroke
March 19, 2019 - CT showing enlarged lymph node. “Reoccurrent lymphoma cannot be excluded”
April 1, 2019 - PET scan with glowing in the mediastinal area
April 25, 2019 - biopsy
May 2, 2019 - official diagnosis #2
...

I finally got in to Hopkins. Next Tuesday. Saw radiation oncology today, and she was able to talk me down from my ledge. She pointed out it’s very small and localized. I almost said still small, but it’s been 6 weeks since we saw it.  But another week probably won’t matter. And yes, I’m doing radiation this time. We skipped it last time for multiple reasons (read old posts from July 2004). Since I’m now older than 35, the risks aren’t as high anymore. Plus, I don’t want to leave one cell behind this time. I don’t want to do this again in another 15 years!

Maybe this weekend I’ll break out the real computer (instead of the iPad) and write up my lit review, because I can give you all sorts of details about late relapse and chemo response rates.

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