Thursday, June 17, 2004

It's offical

Alrighty then. I ignored this for a couple days thinking it would all just go away. I was wrong. Blech!

The doctor just called me at work. He said he didn't normally like to do it over the phone, but for a couple reasons, which I heard mostly as a Charlie Brown "wa waa wa waa wa waaa", he wanted to go ahead at let me know.

Nodular Sclerosing Hodgkin's Lymphoma

Blech!

I go it at 9am tommorow to get my stitches out from last week's biopsy. Then at 10:45 I'm off to Fairfax Northern Virginia Hematology/Oncology. No clue what goes on from there. Kyle is taking tommorow off work, because he rocks! So he will be there with me.

So, in my 15 minutes of research, I've learned:

The 4 types of classical Hodgkin's lymphoma are
* Nodular sclerosing
* Mixed cellularity
* Lymphocyte depleted
* Lymphocyte rich
Nodular sclerosing type is the commonest of all types of Hodgkin's lymphoma. About half of all diagnosed cases are this type. Nodular sclerosis is commonest in women in their 20’s and 30’s. It is usually picked up at an early stage from enlarged lymph nodes in the neck


I really like the sound of that "early stage" stuff, especially since hey - I'm in my 20
s/30s (29 and 11 months), female, and it was an enlarged lymph node in my neck. Early stage is good. Early stage could mean no chemo. Early stage could just be radition. Keep your fingers crossed.

So anyway, I really don't know much of anything right now, other that having a name for the big ol' lump in my neck. Hopefully I'll know more tommorow.

So now, this blog will be public, as opposed to the 4 or 5 of you that knew of it before. My goal is to keep it updated so that anyone who cares and wants to know what is going on can check, without me having to answer the same questions over and over again. Please don't take that wrong. :-) The other thing, its is a heck of a lot easier for me to type it all out, see it in print, etc than it is for me to verbally say it to anyone. Right now, if you were to call me, I'd probably break down into a sobbing mess. I'd really prefer not to do that. So anyway, pass it around, leave comments (click on the comment link right below the post). And remember, all in all, if you had to pick one, its one of the better ones.

10 Comments:

Anonymous Anonymous said...

We are here for you if you need us. -- Claire

7:27 PM  
Anonymous Anonymous said...

It's just the boss: Hope: You're over the worst part already - the unknowing. Questions? I got answers. Thinking of you.

7:40 AM  
Blogger silverbellz said...

Hopie- (HUGS) We love you so much. - Julie and Bill

8:05 AM  
Anonymous Anonymous said...

Hope you are in my thoughts and prayers. Love ya! - Tina

8:15 AM  
Anonymous Anonymous said...

Oh Hope, I really am so sorry you are having to go through all this. Please know that you are in my thoughts and prayers. Big hugs. Sue

8:27 AM  
Anonymous Anonymous said...

Hope, we love you and are pulling for you. You're young, you're strong, you're great, I'm confident you'll come out on top of this. You'll constantly be in my thoughts and prayers. Hugh

12:32 PM  
Anonymous Anonymous said...

Hope, My prayers are with you. If you need a distraction from the treatments and anything else, you know you are more than welcome to come visit me and the three boys -- we are home for the summer. My advice- don't give up, ask lots of questions, take a tape recorder to your doctors appts so when you are ready to hear more than wa wa wa, you can play the tape! Cel

1:23 PM  
Anonymous Anonymous said...

hey sweetie. i'm here if you need anything. i'm particularly good at having conversations that have nothing to do with the topic that is most on your mind. bonus of being 300 miles away. the downside is this is the best hug i can give you *hug*. take care of yourself and let kyle take care of you too. all of us are here for both of you. love, trout

9:38 AM  
Anonymous Anonymous said...

Hope, I wanted you to know that you're in my thoughts & prayers. I wish you all the best. :hugs & :pray

Cece

12:40 PM  
Anonymous Kellie said...

Hi Hope, you dont know me. my name is Kellie and I'm 24 years old and going through the same exact thing as you. I just happened to come across your post through a search I did while researching this whole thing. I am actually all done with my chemo and am now half way through my radiation. I dont know where you are with all of this but I wanted to let you know not to be scared. It's not the most fun thing to have to go through in life but for one, our type is sooo easily cured. my brother also had it (same thing) about five years ago and he's doing just fine, and secondly, when you have so many people around you supporting you like you seem to have, it is not as bad physically either. All you can do is keep your head up, keep as much of a smile on your face as possible and know there IS a light at the end of the tunnell. I am almost there and before you know it you will be too. :-). If you ever need to talk to someone, who's gone through it, about your symptoms or about any questions on what is normal to feel etc... please email me at kmmill03@ aol.com. Keep thinking positively :-) you'll be fine.

2:50 AM  

Post a Comment

<< Home