Thursday, June 24, 2004

Alrighty - we have a game plan

Remember the lady I mentioned who handles insurance stuff for the oncologist's office, and how I was glad she was on my side? Well, after going around in circles with the PET place, visiting them in person today, and them telling me they needed to verify my insurance and the earliest I could get in was Wednesday or Thursday of next week, I talked to my nurse and explained what was happening. She got the awsome lady right on it. 10 minutes later the nurse called me back and told me I had an appointment for 8:30am on Monday. YAY!

I'm scheduled to start chemo a week from today. 4 weeks after my first Dr visit, and 1 week after getting the official word. This assumes there are no surprised in the PET. K is taking off work tommorow for the port installation and next Thursday for the chemo. After that, plan A is that I get to drive myself after the first. Plan B is scheduling it for afternoon, and then he could just be dropped off after work and drive my car home.

4th of July is my favorite holiday - so everybody else better have a damn good time for me! Drink some beer, catch some fish or crabs, generally chill by whatever body of water is nearest, and shoot off the bigest fireworks you can find! (i.e. go to PA or TN - not these wussy VA "fireworks")

As to mental state - the whole thing is starting to sink in now. Feels like I have been on autopilot for the past week, getting appointments set up and insurance crap straight. I think it was when I was laying there during the MUGA this morning, looking at all this expensive equiptment running these high tech tests - I realized that they only do these tests when something serious is wrong with ya. I have no fears about conquoring the disease, mostly fears about the treatment. But the whole thing is a bit overwhelming. Well, more than a bit. Eh.. lets just say I'm having a pity party day. But, as G says, I'll sit around and feel sorry for myself for a day or two, then I'll bounce back :) So, no worries!

I personally know three other folks who have had Hodgkin's, and both are doing great! One is someone from my hometown - she was a couple grade under me, but I coached her Jr High Flag Corps. Another is my rockin' boss. And the last is my aunt. :) Everyone is alove and well! Odd thing, the risk is 3 in 100,000 folks. I don't know 100,000 folks!! I guess thats per year, and we didn't all get it in one year. But still, its supposed to be relitively rare, yeah I personally know so many folks. And apparently my step-sister knows someone too. Craziness!

I turn 30 next month - 30 years ago Hodgkin's was pretty much a death sentence*. Its amazing what medicine has done in my lifetime. Which is why I'm so confident of a quick, relitively easy, and wonderful outcome!

On that note... I'm done talking for the evening (yeah right!). The next time I post, I'll have a spiffy cool port inside me!

p.s. this @!#$^@ needs a spell checker. We all know I suck with typeing and spelling!

* addendum - I've have since been reminded that my aunt also had Hodgkin's, and it was close to 20-25 years ago. So, that stat could be wrong. I read it on a web page. But 50 years ago they couldn't treat it.


Anonymous Anonymous said...

i like the moose smiley :)

you are allowed to have multiple pity parties. we all have them for much less serious things.

as always, you can call me and i can regale you with my own ills that will make you giggle and help you think about something other than what is really on your mind.

love, trout

6:57 PM  
Anonymous Anonymous said...

sorry about your iv experience... those suck majorly! especially if the chick didn't know what she was doing?!? yow!
chemo is scary.. but i'm sure you'll be ok.
so you won't be going to d c fireworks with me, huh? not even if i carry you? j/k...
greg and mo are going up on monday, are you ok for seeing mo before you go in? he was really looking forward to seeing aunt hope <3
who was it that you know? do i know them too?

7:34 PM  
Blogger Gypsy said...

Good luck today, Hope!! I know it's all very overwhelming, but you'll be fine. I have complete faith {hugs}

7:18 AM  
Anonymous Anonymous said...

My thoughts are with you Hope!! - Tina

10:29 AM  
Anonymous Anonymous said...

Tina Johnson here (Remember me?????? Your AUNT!)

Our prayers, and thoughts are with you. You sound like you are in exceptional hands and have a great physical and emotional support system. There is, however, one big word in chemo.....HYDRATE! HYDRATE! HYDRATE! Drink gallons of water before and after treatment. It supposedly really lessens the bad effect. Claude and I send our love.

12:39 PM  
Anonymous Anonymous said...

Hey sweetie, just thinking about you getting your port today and wanted to give you some hugs! You are plodding through this like a champ, in spite of everything.

12:51 PM  

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